coping with an Adolescent Cerebral Palsy

How a Caregiver can cope with an Adolescent Cerebral Palsy

Afonso, T., Pontes, F. A. R., & Silva, S. S. da C. (2018). Social support and satisfaction of primary caregivers of children with cerebral palsy. Psicologia: Teoria e Prática, 20(2), 161–174.

The authors in this article aimed to analyze the satisfaction associated with social support available to primary caregivers of children with CP. The study examined 101 caregivers of children within the age bracket of 0 to 12 years with cerebral palsy. The instruments used were: The Social Support Scale, which showed the scale of satisfaction with social support, socio-demographic schedules, and Gross Motor Function Classification System (GMFCS). The results revealed by the ANOVAs indicated that family satisfaction was the highest, followed by satisfaction with friends, intimate satisfaction, and finally, that attributed to social activities. Pearson’s test revealed that supports were positively related to the various types of satisfaction. Caregivers of older children reported comparatively less informational support, and those caring for more compromised children reported less satisfaction with intimacy. The authors concluded that the general level of satisfaction is high and is mainly attributed to the high level of satisfaction with the family.

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Al, G. E., & Long, T. (2013). Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy: A cross‐sectional study. Scandinavian Journal of Caring Sciences, 27(3), 624–631.

The purpose of this study was to provide an insight into the psychological distress and perceived support among Jordanian parents living with children who have cerebral palsy. A cross-sectional, descriptive, correlational design with a nonprobability sample of 204 parents was used in interviewing the parents individually. The GMFCS, Perceived Stress Scale, Beck Depression Inventory, and the MSPSS were administered to parents. The results showed that more than 60% of the parents often felt nervous and stressed. The mean score on the PSS and MSPSS was 27.0 and 58.9, respectively, and severe disability in the child was associated with mental trauma on parents. The study concluded that there is a need for health professionals to develop strategies for reducing parental stress, and policies should be put in place to provide support to parents and improve family-centered services.

Carona, C., Silva, N., Crespo, C., & Canavarro, M. C. (2014). Caregiving burden and parent-child quality of life outcomes in neurodevelopmental conditions: The mediating role of behavioral disengagement. Journal of Clinical Psychology in Medical Settings, 21(4), 320–328.

parents’ behavioral disengagement coping

The purpose of this study was to analyze the direct and indirect, through parents’ behavioral disengagement coping, on the burden of caregiving on the quality of life (QL) of parents and their children with neurodevelopmental conditions. Questionnaires were administered to 156 parents whose children suffered epilepsy and cerebral palsy. Structural equation modeling was used to test a mediation model and confirm direct and indirect effects among study variables. The results revealed that significant direct impacts of caregiving burden on parents and their children’s QL. It equally had profound effects on parents’ QL via behavioral disengagement but not on the children’s QL. The study concluded that parents should be motivated to avoid behavioral disengagements coping in relation to caregiving stress and should embrace active coping strategies for the betterment of their children’s QL


Rieger, A., & McGrail, J. P. (2013). Coping humor and family functioning in parents of children with disabilities. Rehabilitation Psychology, 58(1), 89–97.

This study aimed to examine whether coping humor predicted particular measures of family functioning in parents of children with disabilities. Seventy-two parents of children suffering from autism spectrum disorders and several disabilities completed the CHS and FACES IV. The data obtained was analyzed via single and hierarchical linear regression. The results indicated that coping humor significantly weakly predicted cohesion and flexibility. The study concluded that family cohesion and familial forms of coping play a central role in parenting experiences.





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